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A trip to Austin for one San Antonio family usually means appointments, procedures and sometimes long stays at Dell Children's Medical Center.

This most recent visit was all about fun.

Jennifer Murphy's son, Clayton, wasn't expected to live longer than six months. Six years later and he's still fighting.

He was diagnosed with Zellweger Syndrome, a rare genetic disorder that Clayton falls on the moderate to severe side of the spectrum. His condition has deterorated and there is no cure.

"You treat the symptoms," explained Murphy. Her son has more than a dozen doctors. Many of them are at Dell Children's.

Dr. Danielle Sweeney is a pediatric urologist at Dell Children's and one of many helping Clayton fight.

"Clayton is complex," explained Dr. Sweeney. "We all came to these decisions together and I think that's so important when you have multidisciplinary care."

To help the Murphy's make memories, Dr. Sweeney arranged for a special meeting at a place she knows Clayton loves, the ball park.

The Murphys got a very important player tour of the Dell Diamond and even got to meet pitcher Josh Lindblom.

Clayton suited up for a few different teams back in San Antonio with a special little league group.

"This game is a game I love and I get to play it for a living. It all goes back to a love of the game. He can't show it but his mom knows it. Just that look in his eye or on his face means the world," said Lindblom.

A day at the field this family will remember and cherish.

"Every day is a miracle. I think that has to do with the love he gets and gives us," said Murphy.

The only system in his little body the syndrome hasn't damaged is his heart which he'll keep playing and loving with.

"I'm so blessed to be his mom," said Murphy who leans on her faith and family to get through each day.

The Murphy's will be in the stands for the game.

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